Harteraad (HART) & The Patient's Voice (PV)
Harteraad Partner Information uitklapper, klik om te openen
Harteraad (HART) is a patient organisation for people with cardiac, arterial, and venous diseases (1,5 million patients) and their relatives. HART works in close co-operation with the Dutch Heart Foundation, a charity organization that plays an important role in providing information on cardiovascular disease for patients and the general public. Together, HART and the Dutch Heart Foundation stimulate interaction between patients and scientist, to strengthen societal impact of cardiovascular research.
In collaboration with healthcare professionals, HART fights for high quality care and quality of life for all patients with cardiovascular diseases. HART connects, empowers, and represents patients in various healthcare areas.
Dr. Inge Schalkers
Dr. Inge Schalkers is policy advisor with a research background at HART. She will be responsible for the organisation and coordination of the Patient Advisory Board (PAB) and she will manage the involvement of patients in the study.
The Patient’s Voice Partner Information uitklapper, klik om te openen
Partner Information The Patient’s Voice uitklapper, klik om te openen
Being a heart patient for many years, I discovered that the voice of a patient could be listened to in a different way.
So I started The Patient's Voice.
To involve the voice of the patients in decisions concerning them.
This is done, among other things, by participating in advisory boards of health care providers, researchers and pharma. But also by facilitating advocacy groups which enable patients to speak on behalf of themselves.
Patient involvement is a necessity in healthcare, medical research and pharma.
Do not talk ABOUT patients, talk WITH patients.
Consequently and in close coperation with Harteraad, The Patient’s Voice established the Patient Advisory Board for the STOPSTORM Project.
The board will be actively involved in the project and will have a signifacant role in providing input on several issues from the patients perspective.
Denis Janssen
Founder and owner of The Patient’s Voice
www.thepatientsvoice.eu
+31643921753
KvK / COC nr. 68627750
Mr. Denis Janssen
Publications uitklapper, klik om te openen
- Vroonland E, Schalkers I, Bloemkolk D, Dedding C. Patient involvement in cardiovascular research: a qualitative impact evaluation. Research Involvement and Engagement; 2019: 5: 29.
- De Wit M, Bloemkolk D, Teunissen T, van Rensen A. Voorwaarden voor succesvolle betrokkenheid van patiënten/cliënten bij medisch wetenschappelijk onderzoek (Conditions for the succesvol involvement of patients/clients in medical scientific research). Tijdschr Gezondheidswetenschappen 2016; 94: 91-100.
- Bloemkolk D, Nieuwendaal R. Patient-friendly access to information about medical research. Advisory report, Dutch Clinical Research Foundation, May-Dec 2017.
